Not What I Expected

If life ran like the script we all wrote at age 18, it would be pretty boring, wouldn't it?

Theme Day!

I had a bunch of medical appointsments all end up on the same day. Some of this was due to planning on my part--why keep driving over to the medical center if I could get a couple of things done at once? And one, the *Return of the Epidural* just happened to get scheduled for the last slot that day.

First up, the nurse practicioner to review the current meds. I arrived to a parking lot in utter chaos, and when I came in the lobby, the place was crawling with people who just didn't seem to know where they should be. I knew where I should be, though, and headed upstairs.

After getting the usuals checked out, and getting the okay to move one prescription to nighttime, the NP asked me if I was going to get my flu shot that day. Aha! I told her not this week, because one, I was headed out of town later in the week, and the shots always make me sleepy for one day, and two, I had a quarterly blood test and epidural that day, and darn it, there's only so much fun one person can have!

She winced and wished me good luck.

Off to the blood taking. I have been asked by the nice people at Kaiser to please use one of the major facilities to get my blood taken. I usually need to have someone with experience in either pediatrics or geriactrics to properly hit a vein and get the multiple tubes. My current record for dry "sticks" is five in one session, which lead to a lab tech who was on the verge of hysteria, and my arms looking like someone had gone after me with a rubber hose.

So, 15 minutes later, I'm making the left arm available for this quarter's extravaganza. Then I noticed the needle. Wrong needle--adult gauge. I was pointing this out to the tech when he assured me he was going to hit a vein, and slammed the effing thing in.

Oh, he hit the vein all right. He tore it such a nice hole that the sub-skin seepage started immediately, and when he pulled the needle, the wound just kept on bleeding.

I always find it interesting when the lab tech acts like it's a personal affront that *I'm* bleeding and bruising. Hey Chuckles--there's a reason there are tabs all over my lab folder! It took about 10 min for things to settle down to the point where I was able to get up and leave w/o freaking everyone else out. But I already had the nicely spreading dark purple stain in the pit of my elbow, and it promised to be a lovely mess in a day.

So, a couple hours with repeats of the ice-gel bag, and it was time to go to the anesthesiologist for the epidural. He checked out my back, we went through what I was doing (everything is correct, it's just that the cartilage is a mess), and after a "oh, so spinal headaches are independent events for each epidural" discussion, it was time to bend over and get the beast.

No matter how much local you get on the skin and in the injection site, epidurals are painful. Amazingly painful. This from the woman whose tolerance for pain is legendary at Kaiser. But nothing to do but breathe and bite the effing pillow.

Then the "huh". Okay--what's up. I can feel everything (oh boy, can I), so it's not spinal related. Then he said--"stay still--you're bleeding, and I can't get it to stop". Okay, here's a problem--while I can put my arm up in the air to try and lessen the pressure on the veins in my arm, I can't exactly elevate my lumbar vertebrae independently of the rest of me. So, he's swabbing and swearing, and I'm trying to remember what colour underwear I had on that day (you think of the weirdest things--mine was I was *never* going to get the stain out if I wore something light). He then told me he was going to have to put some pressure on the injection point, and it was going to hurt. Any worse than the repeated Kyle McLaren butt-checks into the boards I'd just had? Bring it on!

Nope, that was just a "put a load of pinpoint pressure on a rapid expanding lower back bruise". The bleeding finally settled down, and he taped me up but good, telling me that I was going to look like I had major surgery on my back. I told him no worries--looked like it was a theme day, and showed him the large plum-coloured heaps o' fun in the pit of my left elbow, and pointed out that was just due to an adult butterfly being used.

At that point he changed his demeanor. I have to tell you, this doctor and I give each other large amounts of good-natured shit. And I understand his p-chem jokes. The guy basically deals with people in various amounts of pain for a living, so there's a lot of sick humour going down for those who are in that space.

But having a patient who he already knows has a connective tissue problem show an aspect of that in front of him, that's a different deal. And telling him that I've been here all my life, so I don't know anything different--that didn't do scads of good. He felt like he blew it. Given the size of needle you need to have for an epidural, it was a miracle nothing had been ticked before now.

So, an evening with the ice gel bag on my back and one on my arm (what, you thought I had only one?), and a week later, the worst of the discolouration is gone. I did find out that the injection point is still a little sensitive when I put some capsacin cream on the area. OMG.

Next time I'll spread out the fun over a couple of weeks instead of a couple of hours.

October 26, 2005 in ehlers-danlos, medical, stuffage | Permalink | Comments (2) | TrackBack (0)

Article on living with Ehlers-Danlos

An article on Ehlers-Danlos syndrome that isn't an obit, for a change....

Unlike others I hear about who have the hypermobility syndrome, I've drawn the genetic "inside straight" of being able to pack on muscle very, very easily. That's kept a lot of the usual problems with unstable joints at bay. I'm not on crutches, not in a wheelchain, and unless something unforseen happens, will not likely find myself in that situation.

As my Sports Physician said:

*real* big muscles
*real* big bones
*real* loose joints

But those really big muscles and bones are helping me out, and I'll take that, thanks.

May 15, 2005 in ehlers-danlos | Permalink | Comments (0) | TrackBack (0)

Freaking out the "stiff people" moment

I was in an elevator yesterday, in my usual "resting pose"--leaning against the rail with my legs bent out in front of me. My legs have a forward bend from the knees of 15%--it's enough to be noticeable.

About two floors into the trip, I noticed that one of the people across the elevator was looking at my legs in abject horror. His eyes just kep getting bigger as he kept looking.

Since I've always been this way, and I'm not looking at me, I keep forgetting how forward-bending legs look to the uninitated.

I stood up straight for the rest of the trip down. That pose is bad for the ligaments, anyway.

March 17, 2005 in ehlers-danlos | Permalink | Comments (0) | TrackBack (0)

Chuqui 3.0

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